The UHealth Hereditary Connective Tissue Disorders Team invites you to attend the First Hypermobility Syndromes Patient and Family Educational Symposium, a free webinar, Hypermobility Syndromes: What You Need to Know.
This is a unique experience to learn about optimal management of hypermobility disorders and the latest research advances from University of Miami Health System experts. Plus, there is an opportunity to have your questions answered live.
Irman Forghani, M.D.
Symposium Director
Director, Hereditary Connective Tissue Disorders Clinic
Clinical Assistant Professor, Division of Clinical and Translational Genetics
University of Miami Miller School of Medicine
These presentations offer general information and are not a substitute for a medical consultation.
For a medical consultation, please contact us at 305-243-6006.
Date: Saturday – May 22, 2021
Time: 9:00 a.m. – 12:30 p.m. ET
Location: This is a virtual, live presentation.
Agenda
| 9 a.m. |
Welcome and Introduction Patient Liaison |
| 9:10 a.m. | Hypermobility Syndromes, an Overview Irman Forghani, M.D. Assistant Professor of Human Genetics Director, Hereditary Connective Tissue Disorder Clinic Division of Clinical and Translational Genetics University of Miami Miller School of Medicine |
| 9:25 a.m. | The International Work of The Ehlers-Danlos Society Lara Bloom President and CEO, The Ehlers-Danlos Society Professor of Practice in Patient Engagement and Global Collaboration Penn State College of Medicine |
| 9:45 a.m. | EDS and the Spine: the “Odd Couple” Barth Green, M.D. Professor of Neurological Surgery Executive Dean, Global Health and Community Service Chairman, The Miami Project to Cure Paralysis University of Miami Miller School of Medicine |
| 10:00 a.m. | Pain Management in Hypermobility Syndromes Roy Levitt, M.D. Professor of Anesthesiology of Perioperative Medicine and Pain Management Vice Chairman, Translational Research and Academic Affairs Director, Institute of Advanced Pain Management University of Miami, Miller School of Medicine |
| 10:15 a.m. | UHealth Hereditary Connective Tissue Disorders Team |
| 10:20 a.m. | Postural Tachycardia Syndrome Alex Velasquez, M.D. Assistant Professor of Clinical Medicine Division of Cardiovascular Medicine, Electrophysiology University of Miami Miller School of Medicine |
| 10:35 a.m. | Gastrointestinal Manifestations in Hypermobility Syndromes II Joon Paik, M.D. Assistant Professor of Clinical Medicine Director, Gastroenterology Motility Division of Gastroenterology, Department of Medicine University of Miami Miller School of Medicine |
| 10:50 a.m. | Commonly Asked Questions in Mast Cell Diseases Tara Saco, M.D. Medical Director, Windom Allergy, Asthma and Sinus, Mast Cell Medical Center of Florida |
| 11:05 a.m. | Cardiac involvement in EDS Juanita Hunter, M.D. Assistant Professor of Clinical Pediatrics Co-Director, Hereditary Connective Tissue Disorder Clinic Division of Pediatric Cardiology University of Miami Miller School of Medicine |
| 11:20 a.m. | Movement Therapy in Hypermobility, Ehlers-Danlos Syndrome and Chronic Pain Jeannie Di Bon Movement Therapist and Author |
| 11:25 a.m. | Orthopedic Manifestations of EDS Joseph Gjolaj, M.D. Associate Professor of Orthopaedics Co-Director, Spine Fellowship Program University of Miami Miller School of Medicine |
| 11:40 a.m. | Principles of Physical Therapy in Patients with Hypermobility Arthralgia Marlon Pereira, P.T., D.P.T. Assistant Professor of Physical Therapy Dual Board Certified Orthopedic and Sports Specialist UHealth - University of Miami Health System |
| 11:50 a.m. | Pelvic Health Physical Therapy in Patients with Hypermobility Syndromes Andrea Wood, P.T., D.P.T. Board Certified Women's Health Clinical Specialist (WCS) UHealth - University of Miami Health System |
| 12:00 p.m. | Hand Therapy for Greater Upper Body Function for Patients with Hypermobility Syndromes Gaylene Horsfall, M.Ed. Certified Hand Therapist UHealth - University of Miami Health System |
| 12:10 p.m. | Physical and Occupational Therapy Panel and Question and Answer Session |
| 12:20 p.m. | Closing Remarks Irman Forghani, M.D. Director, Hereditary Connective Tissue Disorder Clinic Division of Clinical and Translational Genetics University of Miami Miller School of Medicine Juanita Hunter, M.D. Assistant Professor of Clinical Pediatrics Co-Director, Hereditary Connective Tissue Disorder Clinic Division of Pediatric Cardiology University of Miami Miller School of Medicine |