Service Request Process
- Investigator submits BCSR Request Form via RedCap
- BCSR leadership meets with investigators to review service needs
- Receives clarification on any inquiries
- Develops a service quote for investigators’ review and approval
- BCSR begins services
- BCSR team members meet with PI or designated member of PI’s team weekly/bi-weekly throughout the study
Services
BCSR services include coordinating the recruitment and retention of study participants; supporting the development of culturally and linguistically tailored study materials, including translation of informed consent forms and recruitment materials in Spanish and Haitian Creole; facilitating data and laboratory specimen collection in clinical and community settings; and assisting with the development and delivery of research interventions across the cancer continuum, from prevention to survivorship. Investigators can opt for support of selected research-related activities (e.g., recruitment or translation) or for a full range of support, including study project management, operationalizing the study design, and intervention design, implementation, and delivery.
Specific services include:
Participant recruitment and retention
The BCSR supports the development of culturally appropriate, innovative approaches to engage, recruit, and retain targeted populations for research studies. The BCSR facilitates recruitment in community settings, such as for prevention studies; provides participant screening for studies seeking to recruit cancer patients; and supports ongoing participant engagement towards retention in longitudinal studies. The BCSR utilizes a diverse array of innovative, institutionally developed study recruitment tools and resources to ensure research participants reflect the catchment area.
- Use SCAN360 to identify geographical target areas for recruitment
- Coordinate recruitment and retention strategies
- Promote research through culturally-appropriate communication channels
- Perform eligibility screening and consent study participants
Culturally and linguistically competent study materials
To maximize research participation among Sylvester’s multilingual patient population, the BCSR provides translation services, including Spanish and Haitian Creole. In addition, the BCSR provides service support to ensure that project study materials, including data collection instruments, are appropriately aligned with cultural, linguistic, and other community-based needs and the preferences of a study’s target population.
- Translate study materials into Spanish and/or Haitian Creole
- Support field testing of study materials for cultural and linguistic relevance
- Inform tailored promotional and other study materials
Data and laboratory sample collection
The BCSR’s data collection services include quantitative research services, such as developing and managing study-specific REDCap databases. The BCSR also offers qualitative research services, including conducting focus groups, ethnographies, in-depth key informant interviews, and qualitative data analysis. BCSR services include laboratory specimen collection (e.g., blood, saliva, vaginal swabs, and stool specimens) for behavioral, community-based, and population studies.
- Conduct focus groups
- Transcribe focus groups and interviews
- Administer surveys and qualitative interviews
- Collect laboratory samples
- Support the development and maintenance of new REDcap projects for study specific data collection and e-consenting
Intervention design and implementation
BCSR personnel have extensive experience in delivering evidence-based interventions. For example, trained BCSR personnel conduct culturally adapted cognitive-based stress management (CBSM) for many types of studies.
- Assist PIs with best practices for conducting community-based participatory research
- Manage protocol post-Protocol Review Monitoring Committee and Institutional Review Board approval
- Identify data to be captured and coordinate study activities
- Support the development of intervention tools
Project Management
- Oversee and supervise study team members and operations
- Oversee and track study enrollment and progress
- Coordinate study related trainings and meetings
- Create reports
- Assist with participant incentive disbursement and tracking
- Provide general organization and logistic planning for the project
- Develop standard operating procedures (SOPs)